Northern Ireland Rare Disease Partnership
The Northern Ireland Rare Disease Partnership is a charity that supports individuals affected by rare diseases in Northern Ireland. They collaborate with families, healthcare professionals, and researchers to improve the quality of life and care for those impacted by these conditions.
- Community engagement events
- Advocacy and education initiatives
- Information and support for rare disease patients
Locations
Competitors
Asylum is an independent non-denominational registered charity that aims to share Christ’s love and acceptance with alternative people.
Marie Curie is the UK’s leading end of life charity, dedicated to providing care and support for people with terminal illnesses and their families.
Company Details
Northern Ireland Rare Disease Partnership is operated by Northern Ireland Rare Disease Partnership and is a Active company incorporated on 13 February 2012 with the registered office located in Newtownards, County Down. Northern Ireland Rare Disease Partnership was registered 13 years ago.
Status
Active
Size
Micro
Directors
15
Age
13 years old
Employees
3
Turnover
£61.7K
Total Assets
£46.51K
Cash in Bank
£34.97K
Total Liabilities
-£1.59K
Teams
6
4
3
Chief Executive Officer • Joined Feb 2022
Partnership Development Officer • Joined Oct 2022
Community Navigator • Joined Aug 2024
Community Navigator
Co-chair • Joined Jan 2025
Volunteer • Joined Mar 2016
Community Navigator • Joined Aug 2024
Community Navigator
Co-chair • Joined Jan 2025
Volunteer • Joined Mar 2016
Chief Executive Officer • Joined Feb 2022
Partnership Development Officer • Joined Oct 2022
Co-chair • Joined Jan 2025