Rubinstein-Taybi Syndrome Support Group
The Rubinstein-Taybi Syndrome Support Group is a registered charity that provides information and support to families affected by the rare genetic condition, Rubinstein-Taybi Syndrome (RTS). The charity connects families to create a support network and raises awareness about RTS while encouraging research into the condition.
- Research encouragement
- Social family get-togethers
- Awareness raising activities
- Conferences and learning events
- Information and support for RTS families
Locations
Digital Popularity
Social Media
LinkedIn20 Followers
Competitors
Kidney Wales is a charity dedicated to supporting individuals and families affected by kidney disease in Wales.
Company Details
Rubinstein-Taybi Syndrome Support Group is operated by Rubinstein Taybi Syndrome Support Group and is a Active company incorporated on 30 November 2011 with the registered office located in Rickmansworth, Hertfordshire. Rubinstein Taybi Syndrome Support Group was registered 13 years ago.
Status
Active
Size
Micro
Directors
6
Age
13 years old
Employees
1
Turnover
Unreported
Total Assets
£67.55K
Cash in Bank
Unreported
Total Liabilities
Unreported
Teams
2
1
1
Nonprofit Director & Chairperson • Joined Sep 2020
Administrator • Joined May 2019
Administrator • Joined May 2019
Nonprofit Director & Chairperson • Joined Sep 2020