The Ehlers-Danlos Support UK

The Ehlers-Danlos Support UK is a charity that provides support, advice, and information to individuals living with the Ehlers-Danlos syndromes. Established in 1987, it is the largest charity in the UK focused on representing and supporting people with all types of EDS.
  • Support groups
  • Freephone helpline
  • Fundraising events
  • Membership services
  • Educational materials

Size
Small
Phone
N/A
Email
N/A
Locations
Devonshire House, Manor Way, WD6 1QQ
08002461391
Digital Popularity
Popularity over time
Social Media
Competitors
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The Rainbow Centre
The Rainbow Centre is a charity that provides life-changing services for children and adults with neurological conditions, including acquired brain injuries.
Company Details
The Ehlers-Danlos Support UK is operated by The Ehlers-Danlos Support UK and is a Active company incorporated on 5 March 2014 with the registered office located in London, Greater London. The Ehlers-Danlos Support UK was registered 11 years ago.

Status
Active
Size
Micro
Directors
20
Age
11 years old
Employees
Unreported
Turnover
£423.72K
Total Assets
£292.54K
Cash in Bank
£287.89K
Total Liabilities
-£10.67K

Director • Trustee • British • Lives in England • Born in Nov 1973
Director • Director • Secretary • Secretary • Trustee • British • Lives in England • Born in Jan 1979
Director • Barrister • British • Lives in England • Born in Feb 1974
Director • Secretary • Museums And Heritage Manager • British • Lives in England • Born in Nov 1974
Director • Consultant • British • Lives in England • Born in Sep 1954
Director • Pharmaceutical Company Executive • British • Lives in England • Born in Nov 1983
Teams
All
13
Management
6
Non-Profit
5
Other
3
Chief Executive • Joined Jun 2023
Fundraising Manager
Senior Fundraising Manager • Joined Sep 2019
Senior Communities Manager • Joined Aug 2019
Area Coordinator • Joined Mar 2018
Area Coordinator • Joined Aug 2021
General Practitioner • Joined Apr 2017
Board Member / Trustee • Joined Jun 2022
Member Of Medical Advisory Panel EDS UK • Joined Dec 2018
Volunteer • Joined Aug 2023
Chief Executive • Joined Jun 2023
Fundraising Manager
Senior Fundraising Manager • Joined Sep 2019
Senior Communities Manager • Joined Aug 2019
Area Coordinator • Joined Mar 2018
Area Coordinator • Joined Aug 2021
Senior Fundraising Manager • Joined Sep 2019
Board Member / Trustee • Joined Jun 2022
Volunteer • Joined Aug 2023
Helpline Adviser • Joined Oct 2021
Trustee • Joined Jun 2020
General Practitioner • Joined Apr 2017
Member Of Medical Advisory Panel EDS UK • Joined Dec 2018
Men’s Coordinater • Joined Feb 2019
View 13 members